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Does Anyone Else Have AL Amyloidosis With Multiple Myeloma Together?
You should consult with your doctor. In my opinion, if he is having a positive hematological result why not continue?
Does Anyone Know Of Any Good Phone Apps That You Can Track Amyloidosis With. Like Tracking Symptoms And General Health
I have an iPhone - I will check it out
Has Anyone Got Approved For SSD For Cardiac Amyloids Or Neuropathy
Thank you will do I’m in an electric wheelchair just started the process hope u doing well
Diagnose 1 Year With Cardiac Amyloidosis With No Treatnent At All... Expected Time Alive?
Call you cardiologist and get him to help you with the application for meds.
Has Anyone With Hattr Experienced Burning Sensation On The Top Of All Toes?
I often have what I describe as a body headache, and get very little sleep.
Yes
Has Anyone Developed Tremors In Their Hands?
I had tremors but they are so much better as is my pain and neuropathy. I have been doing acupuncture, neuromed electrical therapy, and cold laser therapy. I have had 68 treatments so far. I have… read more
Is Anybody With Al Amyloidosis On Dyalis Aswell. I Have Been On Dyalis And Daratumab Since August Last Year.
😍😃
Thanks Katy .I was unlucky I got Covid a couple of weeks after my Al Amyloidosis diagnosis and that put me on Dyalis and Daratumab at the same time.Thanks for your prayers.Best Regards Eugene.
What Experience Have You Had With Improvement Or Continued Decline In Your Ejection Fraction While Taking Vyndamax?
My EF has been declining and I am wondering what chance there is of improvement. I have wild type.
Impressive!
Can Anyone Let Me Know When Vyndaqel Will Be Launched In India.
Need Direction, PLEASE-Could This Be Amyloidosis?
I've gotten five different dx from five different specialists. However, none want to put the puzzle together. Most recently, my PC thought I'd had a heart attack-severe shortness of breath, exhaustion, cough, abdominal pain, and chest discomfort. Hospital performed a bunch of tests - stress test was normal and the echo showed mild left wall thickening and mildly enlargement w/grade 1 diastolic dysfunction - the right aortic valve is trileaflet w/sclerosis and mitral valve has calcified annulus… read more
Hi Sandra, to confirm amyloidosis. I had a heart mri that showed suspicion of amyloidosis. I then had a nuclear scan to confirm. I have the wild type. Hope this helps.
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