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Is The Drug Vindaqel Just As Effective As Vindamax? What's The Difference?
I have wild-type ATTR amyloidosis.
Does Anyone With AL Amyloidosis Have A Defibrillator/pacemaker? How Did Things Change For You And What Lifestyle Changes Did You Make?
Sean, so far, so good for me as well! After nearly 11 months, no shocks.
Can Wtattr Go To Only 1 Spot
Wild-type ATTR (wtATTR) amyloidosis primarily affects the heart, but it can also impact other areas. Here are some key points from my knowledge base:
- Primary Target: wtATTR amyloidosis usually… read more
I Have Wtattr Will It Get To My Heart, Its Not There Now
I agree with Alain. I likely began experiencing early symptoms of my wild-type amyloidosis at least 20-years ago.
Does Anyone Have Experience With Thei Vyndamax Being Switched To Vyndaquel?
I have ATTRwild type, and been on Vyndamax for about 8 months. My new insurance company will not give prior authorization for Vyndamax, only for vyndaquel. The doctor’s office is working with insurance and with Pfizer. I have one more month of Pfizer assistance program left. I am very compulsive and want this resolved before the last minute.
I just want to know if anyone else has had to move between the two medications? And how did that work for you?
Good luck
Hello, Has Anyone Seen A Commercial Promoting A Medication For ATTR-CM Other Than Vyndamax? I Saw It In Passing But Can’t Find It Online.
There is another commercial that mentions amyloid, but it actually pertains to Alzheimers, which is Beta Amyloid and treated in an entirely different manner. This commercial does NOT apply to our… read more
How Rapid Is Rapid
I'm very new to my diagnosis. Like 3 days new. Outta curiosity how rapid is considered rapid enough to warrant an ER trip??
I have low bp. My heart rate went down to 35. They decided I needed a pacemaker. Your heart rate should be between 60-100 beats per minute. I would definitely consult your cardiologist. Any time it… read more
Which Hospital To Choose.
I have 2 hospitals in my state. One that is more traditional medical care and the other is Yale and its more clinical trials and researchers
Oh wow thank u so much.
Amyloid In The GI Tract
I have amyloid in my GI tract and after 2 years of treatment I feel like I’ve plateaued. I hope not because it’s still not great. Anyone out there still getting better?
LOL…okay Theresa😂
Wtattr Nauseous Most Mornings I Take Difluisinal
Can you take zofran? That helps me with nausea.
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