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Do Any Of You Suffer With Shortness Of Breath And Weakness When Walking?
Today I am to have "breathing tests". I had a brief test in my doctor's office last month that didn't have very good results.
Has Anyone With Wild Type Amyloidosis And Taking Vyndamax Been Given A Life Expectancy In Years?
I have been given an expiration year, but my twin pre school great grandchildren owes me money for diapers and formulas. So l'm not going ANY WHERE until I get my money. I just want my money from… read more
Hi My Dad Is Now Off AMVUTTRA But We Are Looking Into Other Options What Other Medication We Can Have ? What Other Medication For Attr ?
My dad has already been on AMVUTTRA and had two serious adverse reaction 5 days apart after injection . He's not on any medication now but going back to see what other options there is
How To Help Polyneuropaty
How Does AL Amyloidosis Affect Your Muscles?
I’m experiencing lower back pain-and haven’t strained my back in any way. Just wondering if it could be the Amy?
Rob, I am also on Hydrocodone and it does help. My pain levels also are in the 8-9 levels. Not at all fun :-( I am targeting Kyphoplasy as a possible solution--hopefully by end of April (today is… read more
For Those Of You Who Have ATTRwt, I Am Curious What Additional Medications You Take To Treat Your Heart, Besides Amy Medication(s).
Jardiance 10mg. I also take 200 mg of nattokinase which I get from amazon and swanson.
So I Finally Got My Typing Back, Seems I Have Apolipoprotein A-IV Amyloidosis.
Is this a type of AA? or ATTR? or something completely different... I am so confused
say what
Will I See You/
Philadelphia -Amyloidosis Support Groups Meeting-Face-To-Face
Saturday, April 20, 2024
AL Will Meet In the AM
Registration: 8:30-9:00 am
AL Meeting 9:00 am to 11:30 am
Guests: Drs. Adam Cohen, Chafic Karam & Janice Pieretti from University of Pennsylvania
COMPLIMENTARY LUNCH FOR ALL 11:30 to 12:30
ATTR Will Meet in the PM
Registration - 11:30 to 12:30
ATTR Meeting 12:30 to 3:00 pm
Guests: Drs. Adam Cohen, Chafic Karam & Janice Pieretti from University of Pennsylvania
Reform Congregation… read more
Link on Amyloidosis association website or call and ask tjhem to send you the llink
Does Amlyoidosis Seem To Have Stomach Issues Or Am I Looking Forward To Another Problem?
Stanford is right!
Is CyborD + Dara The Standard First Line Of Treatment For AL Amyloidosis? Are Docs Likely To Differ On This?
Just diagnosed at 57 w/ AL. In process of getting two opinions.
Hate to hear about your back problems Vern. I. didn't know amyloidosis could do that. I wish you a pain free future.
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