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Could You Share Any Dietary Changes And Tips That Have Helped With Amyloidosis?
PS
I had seconds
😁😉
And desert
Question: Did Anyone Lose Their Sense Of Taste And When Or If Did You Ever Get It Back?? Seems Like I Lost Mine A Few Months Back.
You should see a gastroenterologist. Maybe an endoscopy & colonoscopy and have them specifically biopsy for amyloidosis. If they don’t test for that specifically they’ll miss it. Visually everything… read more
Does Your Rapid Heartbeats Take On The Beats Of The Music That You Listen To?
I could have rapid heartbeats and palpitations, then suddenly, l could hear a James Brown song or a Willie Nelson song and my palpitations get right in beat with the song. I wonder if this is normal?
Love it!
Have You Done A Study On Where People With Amyloidosis Grew Up?
I have it in my throat will it always be localized
Did Anyone Lose Muscle Strength And How Did It Take Before You Got It Back? Also To Start Building Muscle Again?
Sad, sorry to hear that. What meds/ treatment are you on. I will be starting daratumumab and Revlimid very soon.
I’m New To This, Got Diagnosed In January Of This Year. Would Like To Develop A Good Exercise Program That Works With My AL Amyloidosis.
You’ll get good exercise tips on here. It all depends on what your doctors say and your tolerance level. Walking is pretty good for me and sometimes dancing 😊
My Blood Pressure Drops When My Feet Are Dangling, Once I Raise My Feet, It Comes Back To Normal. Any One Else Have This.
Theresa, I thoroughly understand the patience lack. I don't have much, either,😜
Is Anyone Having Vision Problems?
I had cataract surgery and now can't see from my right eye,(only right eye done so far. Four surgeries later and no help.
No problems here - except usual old age reading difficulty needing a pair of inexpensive glasses off the shelf.
Regards all.
Richard
I Have Amyloidosis, Wt., With Afib. I Am Scheduled For A Biventricular Pacemaker. Is This Going To Help Me?
BP is aver 115/60, pulse about 61 resting. Taking Vyndamax, Xarelto, Atorvastatin, Levothyroxin, thyroxine.
I had a pacemaker/defribulator with 2 leads one at the top and one at the bottom put in after my diagnosis. I had bradycardia and a-fib. It helped me.
Is There Any Evidence That Jardiance Helps?
That’s good to hear. I’ve been on it for 2 months and definitely feeling better
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