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I HAVE HATTR AMYLOIDOSIS . DOES AMVUTTRA INJECTION,IMPROVE HEART FUNCTION ?
There is a current trial underway to determine just that, HELIOS-B (NCT04153149) , but results not anticipated until 2024.
When Do You Know You Are Getting To The End?
Dear Jim233. If I knew I’d be gone tomorrow, I’d be out there spending every tiny bit of money I have. (Ha ha). Seriously, God onlly loaned us to this earth and he can recall us at any time. My… read more
How Soon Does Aml.travel To Other Parts From The Heart ..
I'
Ive had Amy in my heart fir over 6months
&feel it's now in lower parts..Dorothy
My husband has peripheral yneuropathy and has had carpal tunnel, waiting to hav neurology consult confirm R/t amyloidosis, if so he had this for sometime before we knee it was affecting his heart too
Does ATTRwt Affect Feet Tendons Running Up To Legs
What type AMY do you have?
My Husband Had Bicep Ripe Muscle Few Years Ago Than Carpel Tunnel Last Year Surgery. Than RH Diagnosis This Year And Alzheimer By Cat Scan.
He had mood changes last several years and last year echo stress was ok and he had three falls. I bought this up with our neurologist he did not feel he had amyloidosis ? I feel other than the cardiac diagnosis he had many of the symptoms please advise , He on aricept 2 weeks they plan to start the IV latest treatment in may and we waiting for insurance to auth. Please advise
Depending on where you live - going to a well known medical center can make a difference and second opinion is always good idea!
I Am Always Hungry. Has Anyone Solved The Problem Of Low Calorie Food Intake When We Are All Supposed To Lose Weight (and Keep It Off).
ATTR CM, three years diagnosed and still hungry. Roy2
I have wild ATTR amyloidosis for past 2 years lost 10 lb & not able to gain weight
Is There A Medication Update Pending Fda Approval For TTR
Acoramidis in November I've read
Will I Always Feel This Tiredness With My WATTR-cm? I Never Feel Rested!
I urge you to find a cardiologist who specializes in ATTR-wt. I was told to Keep Exercising (that was actually repeated three times in my first appointment) but your situation might be different. Add… read more
I Feel Nausous Mostly In The Mornings I Have Wtattr What Might Help ? Does That Come With This Disease. Thanks, Joe
Zofran helps me when I’m nauseous. Maybe you’re eating too late at night maybe that’s why you’re nauseous in the morning.
I'm Taking Vyndamax Since November & Have Noticed That My Diastolic Pressure Is In The 40's. Normal?? Drs. Disregard. Sys.120-Dis.47
My blood pressure was sys below 100 and my Dia was low to high 50 now it is sys 150 Dia is 70 to 82 not sure why.
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