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What's The New Medication For Amyloidosis, I'm Currently On Vyndamax. Any Information Appreciated, Thanks! Keep The Faith ☮️🙏
Thanks Tee for your reply much appreciated
My Husband Hasboth Al Amyloidosis & Multiple Myeloma. He Gets Shots & Cyclophosphamide Once A Week. He’s Starting To Loose His Memory.
Brain Fog, chemo brain or whatever you choose to call it is not unusual when taking chemo. https://www.cancer.gov/publications/dictionarie.... Be sure to let his doctors know what is going on so they… read more
I Do Not Know What Symptoms Of Amyloidosis Are: I Have AFBIB Too And Often Feel I Have Long Covid. How Can I Judge What Is Going On?
There’s resource materials on this site that may help you. Everyone has different symptoms.
Is There Anyone From Canada Here??
Hi Kayla, So you want to know who's from Canada, eh?
I am. I joined recently, after "bumping" into the site in search of information. Diane
What Tips Would You Share To Help With Seasonal Allergies?
My hematologist loves histamines
Is Anyone That Is Diabetic That Is On Dara SQ, Dex And Rev Having Or Has Had Problems Regulating Your Blood Sugars? Mine Go Hi In The AM's.
Right back at you Helen!
Anything Good For Nerve Pain Very Severe Polyneuropathy Non Genetic Type Wild Type CTTR Amyloidosos Kills Nerve Cells. Dave
Gabapentin seems to be the first line of drugs that are prescribed. Topical stuff did nothing for my husband. Soaking and massage were comforting, but I think that was more psychological. If pain is… read more
Hi All. Just Wondering Has Anyone Noticed An Increase In LDL Cholesterol Levels On Tafamidis?
I have not but I’ll let you know after my next blood draw
Organ Specific Primary Amyloidosis Can You Explain This Condition?
I am suffering from primary Amyloidisis affected on kideny filtration so creatine increased to @8
Chronic Cough Problem
Can we reduce dialysis frequency from two per week to one .As my c
reatine level is @7 to 8
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