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I Had Radiation One Time For Light Chain Local, But It Came Back In A Different Area. Why Did It Come Back?
Where did you have the radiation, and where did it come back?
My Dad Has Al Amyloidosis. He Is On His 5th Chemo Session. He Is So Lethargic After Chemo & Sleeps Most Of The Day. Is That Expected?
Yes, Mary I started a monthly maintenance plan upon completion of the weekly chemo. I had hoped to gradually shrink the meds I am taking, but the doctors are reluctant to have me do much. Just… read more
Will The Site Be Putting Up Any New Material In The Resources Section? Some Of The Material Is From 2021… Maybe A Little Outdated 🤷🏻♀️
Sean I’m sorry you’re not getting what you need from this site. I might have to agree to disagree on some of your points. I wish you the best on this journey we’re all on.
Hi. I Have HATTR Amyloidosis. I Was Wondering If Anyone Has Ever Gotten Skin Lesions From Vydamax. I Have Them On My Face. Thank You
I have been on Vyndamax for five years with no physical responses. Jim Jones
Folks, How Are Your Side Effects After The Chemo? I Got Severe Diarrhea, And Nothing Can Stop It.
Yes. With some people it works but not with me
Lactose intolerance and seefood intolerance I had from quite long ttime. But nuts and seasoning started to bother me after my very first chemo. Doctors… read more
Does Anyone With Amyloidosis Have A Liquid Intake Restriction? I Think I Need It I Gather Often Liquid In My Chest And Need Fluid Restrict
My prescription is exactly the same as RickKinseth. Morning and evening doses of Torsemide and about mid-day Spironolactone.
I Am In AL Remission For A Year Now But My Blurred Vision Is A Problem,Any Others With Impaired Vision?
Wild type 4 years. My right eye is useless now. I have had 4 operations, and no change in vision. Amyloid fibers in the eye.
I Have Cardiac Attr An I Am On Vydamax. Lost Lots Of Muscle Mass Used To Be College Football Player. Is This A Symptom Any Advice?
Thank you Gents.. appreciate the info on diets! Hopefully will get some back.. I love liver!!
Friends, Did Anyone Have Together With The Amyloidosis A Chest Cavity Pleural Infusion? I Have It Despite The Increased Dose Of Furosemide.
Thanks for the info! God Bless!
What Type Of Doctor Should I Go To? I Was Just Diagnosed A Month Ago. My Family Dr Did Not Tell Me What Type Of Doctor
Hematologist & cardiologist
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