Quick Links
About MyAmyloidosisTeam
Powered By
What's A Common Misconception About Amyloidosis?
Thank you Rob.what you have listed is exactly what I have.so makes me feel better knowing I'm no making it up.Best wishes Dx
Best Medicines Used Today For Polyneuropathy Due To Wild Type Amyloidosis Non Genetic Type?
low IGg also
Sounds familiar! Wish they all had portals Iβve learned to βcopy and pasteβ what Dr So and So said and did. And send it out 5 or6 times. Learning how to be more efficient in trying to not have toβ¦ read more
Best Medicines Used Today For Polyneuropathy Due To Wild Type Amyloidosis Non Genetic Type?
Gabapentin does not make me dizzy; I believe I'm on a lower dose maybe?
Wild Type Severe Polyneuropathy Non Genetic Type Best Medicines For Neuropathy And Skin Conditions With Amyloidosis? Also Amyloidosis.Dave
Gabapentin seems to be the drug of choice.
Not Today
ππ½ππ½πππ»π
Hi Dan From Calgary Asking After Taking 10 Mg Of Dex 2 Hours Before Treatment Increases Your Blood Pressure As Mine Seems To Go Up
Has Anyone Traveled To A Mayo Clinic For Care? If So, Did You Need A Referral ?
I am fairly newly diagnosed with Attr wild type. Iβm being seen by cardiologist who has been wonderful, but I think a neurologist might be helpful. I have a lot of leg and foot pain that greatly affects my mobility. And maybe even kidney and liver. understand that at Mayo there is a whole team, not just one specialty. Iβm just curious as to where I might start.
I have a myChart for UTHealth here in San Antonio. Have had a previous neurological event and have asked neurosurgeon for help finding someone there at UTH SA, but so far not much luck. Go to⦠read more
Does Anyone Have Skin Related Amyloidosis?
My hubby has them on his arms and face also. They seem to fade, then come back.
Does Anyone Else Have Difficulty Walking?
I think I have ATTAmyloidosis- still working on diagnosis - and have had spinal stenosis for years. Walking is getting progressively more difficult, and I am just wondering if this is related to the amyloidosis
It is beautiful!!
Is It Normal For People With Amyloid To Need 10/12hrs Sleep. Dx
Ill make up gor what ya miss!!π
Sign up for free!
Continue with Facebook
Sign up with your email
