Quick Links
About MyAmyloidosisTeam
Powered By
Are There Any Other Treatments For Amyloidosis Of The Eyes Other Than Steroid Eye Drops And Ointment?
Yes, there are other treatments for amyloidosis of the eyes besides steroid eye drops and ointments. These include:
- Lubricating Eye Drops and Bandage Contact Lenses: These can help manage symptoms… read more
While Sleeping Last Night, My Right Leg Felt Uncomfortably Heavy And Painful. I Could Not Find A Position Of Comfort For It. I Have No
Other symptoms of my wild type amyloidosis. Anyone out there with similar pains in legs and what do you do about it?
Conditions that can cause a heavy feeling in the legs include varicose veins, restless legs syndrome, chronic venous insufficiency, peripheral arterial disease, lymphedema, and lipedema. It can also… read more
Yes I Have ALAmyloidosis Is Being Tired All The Time And Have Day When I Just Want To Sleep?
I am on the treatment duramtab once a month.
I'm on monthly Dara too and I get a little tired too. I take lots of rest and don't push myself.
Hi, Has Anyone Been Diagnosed With Wild Type Amyloidosis And Chosen Not To Take The Treatment Offered From The Main Pharmaceutical Company ?
My 79 yr old husband was diagnosed in May 2023 and chose not to take treatment other than water pills , blood thinners and beta blocker. I was wondering what to expect ?
I don't think the pharmac.co. tells anybody what to take! Its the doctors
For Those Who Have Wild Type And Took The Covid Vaccines. How Many Were Diagnosed After Getting The Jabs. Pfizer 1 & 2 And Follow Up?
Hi Vern, Would love it. (Email address can only be seen by the question and answer creators) Al
What Does 'agent Orange' Have To Do With Amyloidosis? I Worked For A Company Who Dealth With The Spray Tanks.
Nattokinase Appears To Be Reducing Amyloids In My Bladder. Anyone Else With Positive Potential?
Been taking nattokinase for several months. Outward symptoms not improved. Still lots of body pain etc. But doctor just told me after stint replacement surgery than definitely reduced amyloids in bladder
I do as much as I can every day to and a little past tolleerable pain.
5 o'clock I start 6 oz of wine.
That's about it.
Why Has My Blood Pressure Dropped From 120 To 95? Thanks
Than you to everyone who answered my question
After Losing Weight And Muscle Mass, Has Anyone Had Experience In Getting The Muscle And Weight. I Am Going To The Gym 5 Days A Week.
I haven’t lost any more weight, just happy to maintain my present 150 lbs by eating way more than before my diagnosis. I also lost muscle mass, but like Theresa it’s coming back slowly through riding… read more
Do Any Of You Receive Dialysis 3 Days/week And Chemo/immunotherapy For AL Amyloidosis 1 Day/week? My Son's Dialysis Is MWF And C/i TH.
Oh thank you! The initials are for Monday, Wednesday, Friday. And chemotherapy plus immunotherapy on Thursdays
Sign up for free!
Continue with Facebook
Sign up with your email
