I Am Seeing A Amyloid Speciast Tomorrow At The Cleveland Clinic. Any Suggestions On Purposeful Questions?
I have severe pain in the spine/hips that cause difficulty walking and esp climbing stairs. Does anyone have anything similar and was any meds given that helps? Thanks
Well my amyloid Speciast will be running more blood test to confirm which type I have. Will see about getting me on Vindamax. He told me about a couple exciting trials that is showing promise in reversing the amyloid that turns into fibers by releasing out of the body, but you must qualify for it. He put me a a more stronger water pill and I will meet him again in a week. So it sounds hopeful.
Thanks Theresa! Yes, Dr Hanna was great and plans on getting me started on meds but if my blood come back showing bad, he will be in rolling me in a study that actually is showing promise to reverse the disease.
You are in excellent hands with Mazen Hanna! He is one of the most dedicated doctors I know and will do almost anything to help his patients.
Please keep us updated on your progress!
Good luck at the Cleveland clinic. I hear their amyloidosis center is great!
Wild Type Nuclear Test
Slight Remission No Treatment
Amyloidosis Found In The Breast