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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Am Seeing A Amyloid Speciast Tomorrow At The Cleveland Clinic. Any Suggestions On Purposeful Questions?

A MyAmyloidosisTeam Member asked a question 💭
Cleveland, OH

I have severe pain in the spine/hips that cause difficulty walking and esp climbing stairs. Does anyone have anything similar and was any meds given that helps? Thanks

November 12
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A MyAmyloidosisTeam Member

Well my amyloid Speciast will be running more blood test to confirm which type I have. Will see about getting me on Vindamax. He told me about a couple exciting trials that is showing promise in reversing the amyloid that turns into fibers by releasing out of the body, but you must qualify for it. He put me a a more stronger water pill and I will meet him again in a week. So it sounds hopeful.

November 13
A MyAmyloidosisTeam Member

Thanks Theresa! Yes, Dr Hanna was great and plans on getting me started on meds but if my blood come back showing bad, he will be in rolling me in a study that actually is showing promise to reverse the disease.

November 13
A MyAmyloidosisTeam Member

You are in excellent hands with Mazen Hanna! He is one of the most dedicated doctors I know and will do almost anything to help his patients.

November 15
A MyAmyloidosisTeam Member

Please keep us updated on your progress!

November 13
A MyAmyloidosisTeam Member

Good luck at the Cleveland clinic. I hear their amyloidosis center is great!

November 13

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