Does Anyone With AL Amyloidosis Have A Defibrillator/pacemaker? How Did Things Change For You And What Lifestyle Changes Did You Make?
Sean, so far, so good for me as well! After nearly 11 months, no shocks.
I’ve had an ICD for eight months. Episodes of V-Tach prompted it. The implantation procedure was simple with short recovery time — mostly incision care. Thankfully, I’ve yet to be shocked.
Yes, I have a CRT-D. It paces me 98.4% of the time. It controls my bradycardia and
my ventricular tachycardia. On average, I have VT 3-4 times per each 3 months (per the recorded data that's transmitted to my electrophysiologist every 3 months). The CRT-D was a replacement (12/29/2023) for my old pacemaker. After having my 2-lead pacemaker for just 6-weeks (11/16/2023), my newly experienced VT required a significant upgrade to the CRT-D. It undoubtedly has saved my life and improved my ability to walk. My quality of life has improved!
I have a pacemaker—just the regular type. I have had no problems, and this is my third year.
I have a pacemaker. I really don’t notice it at all. The surgery wasn’t a big deal. The only thing changed is I don’t have to worry that my heart rate will go down to 35!!!
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