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Does Anyone With AL Amyloidosis Have A Defibrillator/pacemaker? How Did Things Change For You And What Lifestyle Changes Did You Make?

A MyAmyloidosisTeam Member asked a question 💭
Turlock, CA
November 8
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A MyAmyloidosisTeam Member

Sean, so far, so good for me as well! After nearly 11 months, no shocks.

November 13
A MyAmyloidosisTeam Member

I’ve had an ICD for eight months. Episodes of V-Tach prompted it. The implantation procedure was simple with short recovery time — mostly incision care. Thankfully, I’ve yet to be shocked.

November 12
A MyAmyloidosisTeam Member

Yes, I have a CRT-D. It paces me 98.4% of the time. It controls my bradycardia and
my ventricular tachycardia. On average, I have VT 3-4 times per each 3 months (per the recorded data that's transmitted to my electrophysiologist every 3 months). The CRT-D was a replacement (12/29/2023) for my old pacemaker. After having my 2-lead pacemaker for just 6-weeks (11/16/2023), my newly experienced VT required a significant upgrade to the CRT-D. It undoubtedly has saved my life and improved my ability to walk. My quality of life has improved!

November 11 (edited)
A MyAmyloidosisTeam Member

I have a pacemaker—just the regular type. I have had no problems, and this is my third year.

November 8
A MyAmyloidosisTeam Member

I have a pacemaker. I really don’t notice it at all. The surgery wasn’t a big deal. The only thing changed is I don’t have to worry that my heart rate will go down to 35!!!

November 8

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