Does Anyone Else Have Difficulty Walking?
I think I have ATTAmyloidosis- still working on diagnosis - and have had spinal stenosis for years. Walking is getting progressively more difficult, and I am just wondering if this is related to the amyloidosis
🥲
Picture is of 25 foot cross I built and mounted on my house some time ago.
Moved since then.
Cross long gone. But impact still with me...
Stanford keep moving even when it’s tough some days I can run in the house other days I have to move slower … my husband knows when I’m having what we call my wobble day… I feel off balance and just need to move slower ….
Before my treatment and during the first year was tough .. I had to use my walker at times but I haven’t used my walker over a year .. Praise God my treatments are working … I have a new pain started yesterday with my muscle’s in my right side from my neck on my left side all the way to my feet.. I use icy hot and massage those pressure points through my body laying on my bed. Lots of stretching too.. I do have a torn bicep and had rotator cuff surgery 1/20/2020.. I was a swimmer for years swam 1/2 mile ) 6 days a week and ran then walked as I aged. Thank God I already had good work out habits
71 and still moving . I have two catheters that drain each lung everyday .. 2 since Dec 2022 and the other since Dec 2023 because I have amyloids in my heart muscle it causes fluid build up
My sweet husband drains me everyday and a nurse comes two days a week .. I still walk 8,000 steps a day sometimes 10,000 all in my house .. I take Eliquis and dangerous if I fall outside .. some days I feel great other times I can’t move that good.
I love all of our Amyloid friends and I know we are all going to make it. I know a lot of info but maybe each one can take from my notes to help ya’ll … watching base ball Tenn Volvs and Vanderbilt and my Astros about to come on.
Oh also some days I feel like my legs are like lead .. they’re so heavy . Remember we are special and unique … laughing Keeps us moving too. God is Faithful to walk with through our journey .. 🥳✝️🙏🩷⚾️
It is beautiful!!
My legs are geeting progressively weaker and a weird kind of pain that make me slightly nauseous. Dizzy and off ballance all the time.
Watch me walk and you would accuse me of drunkenness. 🥴😵💫🤪😜
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