Friends, Did Anyone Have Together With The Amyloidosis A Chest Cavity Pleural Infusion? I Have It Despite The Increased Dose Of Furosemide.
I have been having my lungs drained now for about a year. Left lung drained at hospital every 2 to 3 weeks. Right lung drained at home by wife once or twice a week. We are using system called PleurX. Using a chart in a spreadsheet and a corresponding graph, I am tracking progress. Volumes drained are gradually decreasing. Have developed some good friends with hospital staff.
I was diagnosed with AL amyloidosis Jan. 2023, completed chemotherapy July 2023 and am now on monthly treatments.
Thanks for the info! God Bless!
Will Acoramidis Replace Tafamidis If Approved In The US? Will We Have A Choice?
Anyone See Any Updated Life Expectancy With Tafamidis? Surely Someone Has Updated This Somewhere Since It Has Been In Use For Years Now
Is Anyone Else Having Trouble Qualifying For The Vyndalink Assistance Program? Seems You Have Many More Hoops To Jump Through. Thoughts?