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Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Friends, Did Anyone Have Together With The Amyloidosis A Chest Cavity Pleural Infusion? I Have It Despite The Increased Dose Of Furosemide.

A MyAmyloidosisTeam Member asked a question 💭
Edmonton, AB
April 28
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A MyAmyloidosisTeam Member

I have been having my lungs drained now for about a year. Left lung drained at hospital every 2 to 3 weeks. Right lung drained at home by wife once or twice a week. We are using system called PleurX. Using a chart in a spreadsheet and a corresponding graph, I am tracking progress. Volumes drained are gradually decreasing. Have developed some good friends with hospital staff.

I was diagnosed with AL amyloidosis Jan. 2023, completed chemotherapy July 2023 and am now on monthly treatments.

April 28 (edited)
A MyAmyloidosisTeam Member

Thanks for the info! God Bless!

April 28

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