Connect with others who understand.

Sign up Log in
Resources
About MyAmyloidosisTeam
Powered By
Real members of MyAmyloidosisTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

When Do You Know You Are Getting To The End?

A MyAmyloidosisTeam Member asked a question 💭
Naples, FL
April 8
View reactions
A MyAmyloidosisTeam Member

Dear Jim233. If I knew I’d be gone tomorrow, I’d be out there spending every tiny bit of money I have. (Ha ha). Seriously, God onlly loaned us to this earth and he can recall us at any time. My mom was in the hospital (similar situation as us) walking the halls one day and the very next day she was gone. Try to be pleased with just being here today and remember all the happy times you had over the years.

April 22
A MyAmyloidosisTeam Member

So you’re bedridden? Again I can’t give you a timeframe only God knows that. You’re still using your phone and you’re not in hospice so that’s good. I’m sorry I can’t be more helpful. I am here and so are the others if you just want to vent. But none of us will be able to give you this answer.

April 8 (edited)
A MyAmyloidosisTeam Member

No. But no physical activity.

April 8
A MyAmyloidosisTeam Member

No one really knows Jim but I’m going to keep you in my prayers ❤️ Are you in hospice care? Can you still function day to day?

April 8

Related content

View All

Will Acoramidis Replace Tafamidis If Approved In The US? Will We Have A Choice?

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA

Anyone See Any Updated Life Expectancy With Tafamidis? Surely Someone Has Updated This Somewhere Since It Has Been In Use For Years Now

A MyAmyloidosisTeam Member asked a question 💭
Sacramento, CA

How Much Coffee Can Be Consumed?

A MyAmyloidosisTeam Member asked a question 💭
Alberta Canada
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in