I started on Vyndamax July 2023. Via Pfizer co-pay assistance my co-pay was $0.
Last month I was notified that Pfizer ran out of funds for that program. Fortunately, I qualified for a co-pay program through Boston Medical Center.

My doctor will not give me a prognosis. His theory is we do not know and if the Vyndamax isn’t working we will move to the next treatment. Also I am on a full regimen of heart failure medications that help protect my heart.

I have been given an expiration year, but my twin pre school great grandchildren owes me money for diapers and formulas. So l'm not going ANY WHERE until I get my money. I just want my money from those kids.

Yes I was given vyndamax since the start of my diagnosois of wattr. I was given a range of 6 to 18 months. After 1 year they told me the average is 3.7 years. I am at 23 months now. I am feeling the affects of amyloid buildup in my body now. Bicep tendons hurt and are subject to rupture. White spots of ttr protein show in my skin especially on my forearms. Rib cage tendons hurt for no reason at all. Joints are stiff and my carpel tunnel and neuropathy is worsening. I believe the vyndamax did slow down the rate of deposition of attr but did not stop it. I also take 200mg of nattokinase with the rest of other medicines. I am focused on saving my heart to preserve my life. I recently read that in the U.K. the average life span is 48 months. Hope this helps you!

I was told that my co-pay would be in the $2,600 per month range. After I protested CVS told me that my insurer would have to pick up nearly $30,000 per month. My amyloidosis team found the Pfizer Patient Assistance Program, worked with me to submit all the paperwork, and then monitored results. Its the only way I could receive this drug.