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Has Anyone Had Cystectomy. My Doctor Is Trying To Convince Me To Have Bladder Removed. Not Yet Sure If Kidneys Have Amyloids Yet.

A MyAmyloidosisTeam Member asked a question 💭
Las Cruces, NM
March 9
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A MyAmyloidosisTeam Member

Awww he just gets too excited. He just needs more training.

I don’t know about this whole thing. If you have amyloid in the bladder and your under treatment it should stop there. I don’t know if I would go that route unless absolutely necessary. It’s a very personal decision.

March 10
A MyAmyloidosisTeam Member

Why does the doctor want to remove your bladder? And how can that sweet Angel cause you a problem 😹😹😹

I’m sure people will help you with Joshua. You have to start training him to walk on a leash the biggest thing I hear from people is the pulling on the leash and jumping up on people.

March 10
A MyAmyloidosisTeam Member

Stanford ... well I still have all my bits but many of my mates do not .A couple have a bag and find it hard to get shoes to match . Okay funnies aside and myself at one stage had high numbers on the PSA and they did a special MTRI thing but of course Amyloid does not show up ? So luckily they waited and I got off the testosterone gel and things came back to normal BUT there is "someting "there .
I say Amyloid and only a biopsy will give the answer IF they are lucky enough to hit the right spot as they did with my kidneys . Miss it and well all the guys I know got infections.
Short story is I am still here and still have a prostate and everything still works with a little help .I am no doctor BUT if NOT cancer and you can still pee and life is okay then at your age I possibly say live and enjoy life .. Your choice with a tough look at all the options.👍

March 9 (edited)
A MyAmyloidosisTeam Member

Does the doc think it will improve your quality of life??

March 9
A MyAmyloidosisTeam Member

I still kept swimming and golfing and going to the gym. Of course, that was when I was a spry 67. 😄

March 9

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